Since attending my first Arthritis Foundation Advocacy Summit in March 2015, I’ve expanded my efforts across a variety of channels to advocate more broadly for patients with chronic illnesses.
I remain an Ambassador to the Arthritis Foundation and now serve as the Leadership Board Advocacy Chair for the Foundation’s New England region. Outside of the Foundation, I’m also serving on Tufts Medical Center’s Patient and Family Advisory Council and I’m a regular contributor to Health Central as a rheumatoid arthritis patient expert. Check out my most recent articles here.
In addition to giving patient talks and serving on the advisory board to a pharmaceutical company, last December I testified before the Massachusetts’ Joint Committee on Public Health in support of two important bills that will repeal an unnecessary 2017 sunset on pharmaceutical co-pay programs that have benefited thousands of patients in Massachusetts.
Advocacy means different things on different days, and sometimes it’s as simple as being honest and open in a blog post or participating in a #patientchat on Twitter. This year I returned to the 2016 Advocacy Summit as a speaker, and I’m always looking for new venues in which to share my story and the stories of others.