• Featured

    [Interview] Mass. house, senate propose bills to limit ‘step therapy’ for medications

    August 7, 2017 | Fox 25 Boston 

    BOSTON – Massachusetts legislators are again considering a bill that would make it easier for patients in the Commonwealth to get the best treatment available quicker. ‘Step Therapy’ is a protocol that insurance companies follow, which requires a patient to try less expensive or older drugs before the insurance company will cover the cost of a newer, more expensive drug. View Full Interview Here 

    What does it mean to be an empowered patient?

    August 2, 2017 | Patients Rising Blog

    Patient advocate Anna Legassie offers advice on how to be an empowered patient. Read More

    [Podcast] Living With Systemic-Onset Juvenile Idiopathic RA

    June 29, 2017 | ZappRx Blog

    “If you ask Anna Legassie about her hobbies, she’ll probably respond with some tale of a triathlon or a Spartan Race. All things considered, Anna appears far from what one would consider “sickly.” And yet, she is sick, critically so.” Read More

    Voices: Are You a Self-Care Slacker?

    June 23, 2017 | Arthritis Foundation Stories of Yes Blog

    Q. Are you a slacker when it comes to self-care? Taking care of yourself is so important, but who hasn’t dealt with the self-care burnout that comes with having a chronic condition? For the first in a new series featuring some of the leading social media voices on life with arthritis, we asked these bloggers about their struggles with self-care. Read More

    Patient Perspective: ICER Final Report on Rheumatoid Arthritis

    June 2, 2017 | Patients Rising Blog

    “Patient advocate Anna Legassie knows firsthand the challenges and side effects of delaying and denying patients access to the right treatment. She offers the patient’s perspective on ICER’s final report on the effectiveness of rheumatoid arthritis treatments.” Read More

    Clara Announces Patient Advisory Board

    May 19, 2017 | Clara Health News

    “Our Patient Advisors come from across the country – from Boston to Texas to Seattle. They’re remarkable advocates for a range of therapeutic areas from autoimmune and rare diseases to cancer. Their advocacy work has impacted the lives of patients worldwide and we’re lucky to have them on Team Clara to help us accelerate the race to develop treatments and cures. So without further ado – meet our talented advisors!” Read More

    Chronic Illness Bloggers To Follow

    May 5, 2017 | Kate the (Almost) Great

    “One of the great things about being a chronic illness patient now – in 2017 – is the community you can be a part of even if you don’t know anyone in person who has a chronic illness.” – Check out Anna and other awesome chronic illness bloggers to follow here.

    House of Representatives Passes American Health Care Act – We Need Your Help to Amend AHCA When it Goes to the Senate

    May 4, 2017 | Arthritis Foundation News Blog

    “The American Health Care Act could remove requirements that protect my access to certain benefits like prescription drugs, which will make it harder, if not impossible, for me to manage my condition,” said Anna Legassie, patient and Arthritis Foundation Advocate.” Read the Full Statement Here 

    Patient Advocacy: How to Prepare for a Speech

    April 25, 2017 | Patients Rising Blog

    If the idea of sharing your patient story publicly makes you nervous, patient advocate Anna Legassie offers a few helpful tips to prepare for your next speech. Read More

    Fitness and RA: 9 Social Media Stars Making an Impact

    April 19, 2017 | Healthline

    “For some fitness inspiration, here are nine social media stars with RA who keep their bodies active. Whether competing in triathlons, running obstacle courses, or practicing Bikram yoga, they like to move it!” Check out in Anna in the #1 spot here!

    Running on Hope: Anna Races Against Still’s Disease

    April 11, 2017 | Clara Health Blog

    “Twenty-two years ago, Anna was diagnosed with Still’s Disease. Today, she’s a RheumAthlete. In between and ahead lay many obstacles. Here, she tells us her incredible story.” Read More

    A Love Letter to Herself | Anna’s fight with Rheumatoid Arthritis

    April 3, 2017 | Salem Photographer Jess McDougall

    “Over the past five years, I have had the strongest and most resilient women walk through my studio door. Every woman is fighting a battle of some sort, no matter how big or small, we all have them. These past two years have introduced me specifically to women who are fighting battles with their health and/or disease. In January, life brought me, Anna. It all started with a phone call…” Read More

    New England CEPAC Meeting: Treatments for Rheumatoid Arthritis

    March 24, 2017 | New England CEPAC

    On Friday, March 24, 2017, The New England Comparative Effectiveness Public Advisory Council (New England CEPAC), a core program of the Institute for Clinical and Economic Review (ICER), met to review the ICER Evidence Report on treatments for rheumatoid arthritis – specifically their effectiveness and value. The webcast of the meeting was recorded, and you can view Anna’s patient testimony (at the 2:46 mark) here.

    Advocate Webinar Series

    March 15, 2017 | Arthritis Foundation

    Every month, the Arthritis Foundation hosts a 30-minute call to dive a bit deeper into advocacy topics featuring special guest speakers, experts, and Arthritis Foundation Advocates. March’s Advocate Webinar Series featured Anna’s presentation on “The Power of Social Media.” Listen to a recording here.

    Rheumatoid Arthritis: The Best of Twitter

    December 1, 2016 |healthline

    “Sharing personal experiences and dispelling myths promotes understanding and can help reduce stigma and discrimination. Here are the best Twitter accounts to follow for news, stories, tips, and support by and for the RA community.” See Anna and the rest of the best here.

    2016 Walk to Cure Arthritis Adult Honoree

    September 18, 2016 | Arthritis Foundation

    “A longtime volunteer for the Arthritis Foundation, Anna Legassie is proud to be recognized as the 2016 Adult Honoree for the Boston Walk to Cure Arthritis! Anna is the team captain for Team Hips and together with her friends and family, she has raised more than $30,000 for the Walk since 2012. Anna is also an Arthritis Foundation Advocacy Ambassador and recently she joined the New England Regional Leadership Board as the advocacy chair.” Read More

    Rheum to Race

    August 18, 2016 | CureArthritis.org Blog

    “Anna Legassie is not your ordinary race competitor — she competes in grueling long-distance obstacle events while facing an even bigger challenge, rheumatoid arthritis (rheum). Being an athlete with rheum poses unique roadblocks for Anna. She has found that not everyone can understand why she would push her body to the limits and has often met resistance from family and friends. In response, Anna has become a pioneer both on the race course and in her doctor’s office so she can compete in the sport she loves.” Read More

    Volume 1: #RealGangstasOfRA

    August 9, 2016 | Dina Neils, Titanium Triathlete Blog

    “Posts from my fellow, incredibly killer, RA Warriors who demonstrate pure badassery in the face of adversity as they fight never-ending battles against horrendous autoimmune disease/chronic illness. These “gangstas” inspire and give me strength every day, and I hope you’ll feel the same. Read about them – follow them – let their rad auras fill your universe with strength and inspiration, then sprinkle that shit everywhere…” Read More

    Feature Friday

    February 12, 2016 | Glove Girl Blog

    “This week’s Feature Friday has got to be one of the most incredible women we have been lucky enough to come into contact with. This young lady was diagnosed with a serious disease at a very young age. You may have heard of this disease through commercials as you are watching your favorite sitcom. It’s time to hit the pause button, learn a little something and bring awareness to Rheumatoid Arthritis.” Read More

    Live Bold, Live Now

    January 4, 2016 | Health Central

    “For Anna Legassie, now 32, remembering when her life changed is like piecing together a puzzle. She can talk about when she was diagnosed, but it’s like retelling a story she’s heard from others. Back when she was 11, she collapsed during band practice. That led to tests, more tests, and finally a diagnosis. A doctor told Anna’s mother to get her a wheelchair so she would get used to having a disability. It was the start of her new life, one of strong medications and an odyssey of surgeries. And, of being someone ‘different.” Read More

    Spoonie Spotlight

    July 12, 2015 | Kate the Almost Great

    “I have to say, today’s Spoonie Spotlight means so much to me because I’m featuring Anna. Anna and I met in person at the Arthritis Foundation’s Advocacy Summit where we, with 4 others from Massachusetts, advocated for others with arthritis. So it makes me so happy to have her here for Spoonie Spotlight.” Read More

    When Failure Isn’t an Option

    June 19, 2015 |  Arthritis Foundation Blog

    “Social media is great for a lot of things — reconnecting with old friends, finding that next job, catching up on the news and perhaps even wasting a little (a lot of!) time. But when Anna Legassie logged on back in May, she wasn’t doing any of those things. She was just trying to get her medicine.” Read More